There's more to life than living...
Life with multiple myeloma: Enjoy in every day - Alen's story
Watch the video of the patient sharing his experience on how he copes with multiple myeloma. Find out how he has found the strenght to enjoy in every day and stay positive.
Life with CLL: Consider myself cured, you can make it too - Nada's story
Watch the video of the patient sharing her experience on how persistency, sharing, faith and optimism are of key importance for life happy endings.
Adventures of a patient living with psoriasis
You can hear the experiences and challenges that a person with psoriasis encounters.
The life of a patient with psoriasis
You can hear the experiences and challenges that a person with psoriasis encounters.
Life with chronic lymphocytic leukemia: I feel I grow stronger every day | Patient Story
Watch the video of the patient sharing her experience on how the faith, optimism and a positive attitude are very important.
PHHU/NPR/1018/0001
Life with multiple myeloma: move forward | Patient Story
Watch the video of the patient sharing her experience on how she copes with multiple myeloma. Find out why it is important to stay positive about the treatment and never look back.
PHHU/NPR/1018/0001d
Life with multiple myeloma: stay positive | Patient Story
Watch the video of the patient sharing her experience on how she copes with multiple myeloma. Find out why it is important to listen to your body and do what you love.
PHHU/NPR/1018/0001c
Life with chronic lymphocytic leukemia: "I work like an absolutely healthy person" | Patient Story
Watch the video of the patient sharing his experience on how he should pay more attention to minor symptoms.
Life with chronic lymphocytic leukemia: My life changed miraculously | Patient Story
Watch the video of the patient and his family sharing how they are coping with the disease by not focusing on it, rather than the fact that he is getting better…
An invisible disease is difficult to fight. Zuzana´s story – being diagnosed with multiple myeloma
"This way I would like to encourage everyone going through the same thing and tell you that science has progressed in such way that even problems like these can be fought and new drugs, which can improve the patients ‘quality of life, keep arriving on the market. "
5. We can be useful members of society: increasing work value and creative activities
The final part of our series shares our own experiences with the community. "How can we be useful members of society?" – we could have given this title to this part.
4. The importance of sport and daily routine: movement and nature
Leading a conscious life has become my routine, an essential part of which is daily exercise. You need to know that I came a very long way in this respect. I could walk exactly three hundred meters: to the car. We decided to implement changes, again, step by step.
3. Those who it’s easier with, but impossible without: family care and human relationships
Before I met my wife, I lived in Budapest alone with this disease for a year. It was a great challenge for me to work and do everyday activities at that time.
2. Mental balance: psychotherapy and conscious lifestyle
Psychotherapy refers to cooperation with a psychologist. It is a golden rule that the patient chooses the helper. In my case, I went on picking until I found the HCP I could trust one hundred percent.
1. The key pillar of mental balance: Medication
Initially, I received my medication in tablet form, and I had very depressing feelings about drugs. For many years I was struggling with uncertainty about whether I took my medication that day or forgot it again? After such problems and more episodes, I found the opportunity to receive my medicine as an injectable once a month.
0. Balanced life with schizophrenia - our first-hand experience
I’ve been living with schizophrenia for more than fifteen years. Me and my wife would like to summarize and share our past experiences with our peers and loved ones in the following article series.
YOU DON'T TELL YOUR PALS ABOUT IT (STANISŁAW, AGED 64)
"I have just divorced, and you don't tell your pals about it. I believe a man would rather confide to a woman than to any of his pals. STANISŁAW, DIAGNOSED WITH PROSTATE CANCER
THE MOST IMPORTANT THING FOR ME WAS TO START THERAPY. I WANTED AND STILL WANT TO LIVE! (RYSZARD, AGED 68)
„I am a different man. I am more aware about the vulnerability of everything that surrounds us, and I take more care about myself and my beloved ones. I also enjoy my life more. I was once very thrifty, and now I and my wife spend our savings on pleasures. And I feel great about it!” RYSZARD, SUFFERS FROM PROSTATE CANCER
DON'T WORRY, I ADORE BALD MEN! (Danuta)
„I want my husband to stay alive, our intimate life is of secondary importance. If we don't have sex, that's OK, end, period. You have to accept it.” Danuta, WIFE OF RYSZARD, PROSTATE CANCER PATIENT
THE WORST THING IS TO BE SAD (HENRYK, aged 63)
"Men are afraid this condition will dampen their sex drive. But it's important to talk about these problems and about the disease. You should remember to get tested. Things happen. In the hustle and bustle of daily life we often forget about ourselves and what's most important.” HENRYK, DIAGNOSED WITH PROSTATE CANCER
I JUST WANT HIM TO STAY ALIVE! (DANUTA, AGED 67)
„We have gone through some rough times, but now we are doing pretty fine. Our priorities have changed. We do get a little crazy from time to time. We travel, go to the cinema, theatre, restaurants. We are very close. Like we've never been before. We live life to the full!” DANUTA, WIFE OF RYSZARD, PROSTATE CANCER PATIENT
THE WORST THING IS TO BE SAD (HENRYK , aged 63)
"Men are afraid this condition will dampen their sex drive. But it's important to talk about these problems and about the disease. You should remember to get tested. Things happen. In the hustle and bustle of daily life we often forget about ourselves and what's most important.” HENRYK, DIAGNOSED WITH PROSTATE CANCER
I JUST WANT HIM TO STAY ALIVE! (DANUTA, AGED 67.)
„We have gone through some rough times, but now we are doing pretty fine. Our priorities have changed. We do get a little crazy from time to time. We travel, go to the cinema, theatre, restaurants. We are very close. Like we've never been before. We live life to the full!” DANUTA, WIFE OF RYSZARD, PROSTATE CANCER PATIENT
Mr. Peter's story
(Czech Republic) After the initial shock, you start to look in the rear view mirror and do your balances. At first, what did I miss or do wrong. But then I went in another direction and realized that I hadn’t wasted my life, that I accomplished things, started a company, had fun and lived a lot.
Mr. John's story
(Czech Republic) This experience with my illness, which the Internet deems incurable, was incredibly valuable to me. It was, in a way, a gift. I reassessed many things in my life. Many priorities shifted and I started to value relationships instead of things.
I was very fortunate in life
(Poland) "When I first learned about my disease, I thought my life was over. For me it was a death sentence."
In search of peace
(Bulgaria) "One way for one to survive is to engage in work, a lot of work. Then one forgets"
A difficult journey
(Hungary) "I take the medicine in the morning, and then I can spend the entire day with my family"
Ups and downs
(Ireland) "In January 2014, my consultant told me my CLL was at an advanced stage and I was given 12 weeks to live."
Choosing life
(Israel) "I take a pill in the morning, which keeps me alive. It’s the thing that keeps my leukemia in check, allowing me to watch my children grow up and hear the parrots that I raise chirp."
Regaining life
(Romania) "I became more active, more confident, my performance levels at work have improved. In short, I have regained my life."
Wojciech Wilkowski
(Poland) "Today people worship beauty, and psoriasis makes life really difficult."
Małgorzata Miszewska
(Poland) "How can I accept my disease when, according to cosmetics commercials, it is the skin that makes women beautiful?"
Andrzej Grządka
(Poland) "Nobody can help you better in your psoriasis than other patients. You should meet them, talk to them, and share experiences because the power to fight the disease is within you."
Małgorzata Kułakowska
(Poland) Małgorzata Kułakowska has been living with psoriasis for 37 years. She now accepts the condition of her skin, but she used to wear long-sleeved and long-legged clothing to hide every inch of her body. A major turning point came after almost 30 years.
Danuta Nowakowska
(Poland) "I started an association. It is called "Move out of the shadows" I myself wanted to stay in the shadows in order not to upset anyone."
Changing everything
(Slovakia) In April 2005, I was diagnosed with multiple myeloma – a cancer formed by malignant plasma cells found in the bone marrow. I accepted the illness with sadness but with humility.